An angel was smiling on me today – in Topshop, Oxford Circus of all places! With Rheumatoid Arthritis I near to never go shopping in person now opting to make my purchases online where there are no painful armloads of clothes to carry or equally painful queues not just for the changing rooms but for also then for the till. And then of course for the tube ride home where my TFL ‘Please Offer Me a Seat’ badge goes mostly ignored. Continue reading →
Our Christmas trip to Mexico was planned way back in the summer but by the time it came around I was dreading it. And not because Trump says it’s full of murderers and rapists. 🙄
Since I fell unconscious at my birthday dinner in September, I developed a blood infection which for anyone with RA means more than just a few days of antibiotics – more like 2 months of antibiotics. Continue reading →
Today I made it out of the house for the first time in 5 days. I was supposed to attend my partner’s family reunion weekender but it was not possible as all of my autoimmune illnesses are at war with each other. Due to this I have also been off my chemo and biological injections for two months and as a result I am exhausted and struggling in physical and mental pain.
I often get told I ‘look so well’. This is a story about how a birthday dinner can quickly turn into a trip to A&E when you have an autoimmune condition (or in my case several).
I don’t always organise something for my birthday but this year I thought I would. I have to admit though, by the time the date came around, I wasn’t in the most sociable of moods as another autoimmune condition of mine Continue reading →
As I sit here taking my weekly chemotherapy, I have just finished reading an article by Chanel White Dear Person Giving Me Unsolicited Medical Advice. Chanel has previously written an article raising awareness of the many autoimmune illnesses which are treated with chemotherapy. She initially wrote this article because she was fed up of people telling her she didn’t need it or that it couldn’t possibly be proper chemo because she didn’t have cancer! Continue reading →
Frustratingly I started writing this post a month ago but RA life has gotten the better of me. Everyday is a Groundhog Day of never-ending pain, hospital appointments, sleepless nights, extreme exhaustion, waiting to see if my new biologic will help and of course RA brain fog. RA brain fog for those who don’t know is a side of the illness which makes the individual unable to focus on anything, this can be from simply getting dressed Continue reading →
This Easter, much like Jesus my hidden disability rose from the ashes! My previous blog ‘On my Last Legs to see The Last Leg‘ instantly went viral, creating heated discussions on Twitter and multiple Facebook networks, with over 6000 views in the first day alone. I feel truly humbled by the fantastic support I have received. Continue reading →
Now who doesn’t love The Last Leg? I have certainly watched it since it first aired alongside the stunning 2012 Paralympics – cue: Public Enemy’s ‘Harder Than You Think’! The year the wonderfully enlightened question arose; ‘if the Paralympians can do that then why can’t all disabled people?’ Umm the same reason the average able-bodied person cannot outrun Usain Bolt perhaps? Because he is an athlete? 🤔 Continue reading →