Stranger Things happened to me at Topshop

Stranger Things happened to me at Topshop

An angel was smiling on me today – in Topshop, Oxford Circus of all places! With Rheumatoid Arthritis I near to never go shopping in person now opting to make my purchases online where there are no painful armloads of clothes to carry or equally painful queues not just for the changing rooms but for also then for the till. And then of course for the tube ride home where my TFL ‘Please Offer Me a Seat’ badge goes mostly ignored. Continue reading “Stranger Things happened to me at Topshop”

GE2017 We are all Daniel Blake

GE2017 We are all Daniel Blake

As the UK gets ready to vote tomorrow – a fitting repost of my article on the award winning film I, Daniel Blake. The Tory government has spent the last 6yrs vilifying, tormenting and throwing the most vulnerable in society into poverty whilst ensuring the rich get richer. And with plans to remove our human rights as and when they please, things are set to become even worse for disabled people… #GE2017 #NastyParty #VoteCorbyn #WeAreAllDanielBlake Continue reading “GE2017 We are all Daniel Blake”

The NHS cookie crumbles

The NHS cookie crumbles

Wow thanks for your response on my last blog! Great to know so many care about our NHS! Well, today was *that* hospital appointment. Despite a month of messages, I still didn’t hear back from my hospital to tell me if my chemo was ready aka ‘would driving in today be a wasted journey making me more ill?’ So I did my best ‘dragging a dead body around’ impression this morning, driving an hour in crazy traffic to get to hospital. These two dialogues happened…

Continue reading “The NHS cookie crumbles”

May stole my NHS! Bring on June!

May stole my NHS! Bring on June!

Bum. I’ve run out of my chemo aka methotrexate aka mtx. This isn’t me being slack, this is the rippling effects of government cuts to the NHS which has only worsened with Theresa May. Over the past month I have let my hospital know in person that I am running out, left four phone messages and have also reminded them to re-instate the order of my biologic drug Humira. When I ring the answer phone message says ‘due to NHS cuts the phone lines are now only manned 3 days a week’. Continue reading “May stole my NHS! Bring on June!”

When ‘roid rage’ gets ‘hangry’

When ‘roid rage’ gets ‘hangry’

Just cannot stop eating on these bloody steroids! My friends who also have RA ask if I’m also angry on them as they are sometimes, I say ‘no, just hungry’. Then I recall that my bf has called me hangry four times in the past week. When it comes to a mealtime and food is not ready pronto, I feel a soaring agitation building. Now, both myself and my boyfriend cook and I haven’t told him this but Continue reading “When ‘roid rage’ gets ‘hangry’”

Fun with spiralisers

Fun with spiralisers

Monday fun! Trying out my new spiraliser! Courgetti! 🤗 A bit tricky on my RA hands but would be easy for anyone without fine motor skill problems to use. Total food porn satisfaction to watch the courgette spaghetti being made – and so quick too! Initially I had been a bit wary after reading some rare but horrific incidents some have had on the super sharp Japanese blades (obviously myself being more at risk of this) but so far I am still alive! Yay! Continue reading “Fun with spiralisers”