My birthday trip to A&E

I often get told I ‘look so well’. This is a story about how a birthday dinner can quickly turn into a trip to A&E when you have an autoimmune condition (or in my case several).

I don’t always organise something for my birthday but this year I thought I would. I have to admit though, by the time the date came around, I wasn’t in the most sociable of moods as another autoimmune condition of mine Continue reading →

Sunshine Blogger Award

So I have won another blogger award! The ‘Sunshine Blogger Award’ is awarded from bloggers to other bloggers who are considered “positive and creatively inspire others in the blogosphere”. Well this is such a lovely compliment! I always write from the heart on topics that may seem quite intense, especially to those unaware that these ableist situations exist, so I thank everyone who has read (and will hopefully continue to read) my blog. Continue reading →

Why that Paralympics trailer dehumanises disabled people

That Channel 4 Paralympics trailer makes my ears bleed. The Paralympics as a sporting event is fantastic in it’s own right, the athletes are clearly talented and have worked hard to get where they are. However the tone of the media surrounding this year’s Paralympics couldn’t be more oppressive, dehumanising and patronising to disabled people. Continue reading →

Published on Horizon 2020

I’m delighted to have my latest blog How Brexit affects my health, your health, the health of the UK republished by Horizon 2020 Funding! Horizon 2020 is the largest EU Programme for Research and Innovation in science and technology. In my article I note the importance of this funding to our advancement in an ever increasing and exciting world of technology and innovation – in every area of science from medicine to green tech. Continue reading →

How Brexit affects my health, your health, the health of the UK

I woke up in what seemed like a parallel universe on the morning of Friday 24 June. First, Facebook told me the Brexit vote had won with a referendum result of 52% to 48%. A few minutes later David Cameron was resigning, next I saw a clip of Donald Trump arriving in Scotland to open a golf club! What was happening?😱 Don’t get me wrong I’m glad Dave is out but I wanted to have the opportunity to vote him out democratically via a general Continue reading →

Patient Advocate on Twitter

Something else rather lovely that has happened this week, apart from being nominated for a Blogger Recognition Award is that I have been named as a Patient Advocate on Twitter. Marie Ennis-O’Connor is a keynote speaker at the world renowned Mayo Clinic and scholar for Stanford Medical X. As one of Klick Health’s top 50 global social media influencers in health Continue reading →

Blogger Recognition Award

I was delighted to be recently nominated for a Blogger Recognition Award! Having not been blogging for long and always feeling guilty because my health doesn’t always allow me to write as often as I would like, it’s nice to have a little recognition, so thanks! 😊 I am taking the opportunity here to nominate other bloggers whose work I find engaging. Continue reading →

Don’t Take Chemotherapy, Eat This Apple Instead

As I sit here taking my weekly chemotherapy, I have just finished reading an article by Chanel White Dear Person Giving Me Unsolicited Medical Advice. Chanel has previously written an article raising awareness of the many autoimmune illnesses which are treated with chemotherapy. She initially wrote this article because she was fed up of people telling her she didn’t need it or that it couldn’t possibly be proper chemo because she didn’t have cancer! Continue reading →

ITV response to The Last Leg

Frustratingly I started writing this post a month ago but RA life has gotten the better of me. Everyday is a Groundhog Day of never-ending pain, hospital appointments, sleepless nights, extreme exhaustion, waiting to see if my new biologic will help and of course RA brain fog. RA brain fog for those who don’t know is a side of the illness which makes the individual unable to focus on anything, this can be from simply getting dressed Continue reading →

Cobbled Bones and Blue Badges

Hi all! Apologies for my absence over the last couple of weeks but quite frankly I have been feeling pretty rotten, my RA is all over the place, the pain in all my joints, muscles, tendons, head and face is a little bit ridiculous as if I am carrying an obese baby hippo on my back night and day. And it isn’t even a cute baby hippo. Continue reading →